![[90] A Father’s One Wish Artwork](https://www.buzzsprout.com/rails/active_storage/representations/redirect/eyJfcmFpbHMiOnsiZGF0YSI6MTc2NDk3MDA1LCJwdXIiOiJibG9iX2lkIn19--014400b52d10adbd3daea74488e45f5ff1a070f7/eyJfcmFpbHMiOnsiZGF0YSI6eyJmb3JtYXQiOiJqcGciLCJyZXNpemVfdG9fZmlsbCI6WzYwMCw2MDAseyJjcm9wIjoiY2VudHJlIn1dLCJzYXZlciI6eyJxdWFsaXR5Ijo2MH0sImNvbG91cnNwYWNlIjoic3JnYiJ9LCJwdXIiOiJ2YXJpYXRpb24ifX0=--0b154cb6b88107719b1a277923d35676ba5519cc/CHRIS%20B-AUDIO%20ART.png)
The Entrepreneur Next Door 🏡
My name is Zev Asch; welcome to The Entrepreneur Next Door Podcast. I've spent my entire career in what I call "the trenches of small business and entrepreneurship." I spent three decades as a successful corporate marketing executive in small and family-owned businesses, an academic career as a Graduate Marketing Professor and director of Entrepreneurship and leadership at Touro University Graduate School of Business, and over a decade as a business transformation coach.
As an avid podcast listener, I've always craved one that features unknown, grounded non-celebrities and entrepreneurs who can be my next-door neighbors.
Join me for intimate, unfiltered conversations with everyday people who took a leap into entrepreneurship and openly share their journey from failure to success. I spend hours preparing for each interview and asking intimate and challenging questions; one insight can make a profound difference in your business or life.
Finally, I promise that my podcast will never be used as a platform for me or my guests to self-promote. I strictly prohibit it and ensure each guest understands before being featured on my show.
My goal is to ensure that every episode delivers at least one insight that can help you improve your business or one aspect of your personal life.
Listen, subscribe, and share this channel with my thanks.
Music courtesy of ZakharValaha at Pixabay.
The Entrepreneur Next Door 🏡
[90] A Father’s One Wish
Use Left/Right to seek, Home/End to jump to start or end. Hold shift to jump forward or backward.
What is GNAI1 syndrome? In this special episode, I sit down with my good friend Chris B. to discuss his 11-year-old son Brayden’s diagnosis with GNAI1 syndrome, an extremely rare genetic disorder with only around 25 known cases in the United States.
If this powerful story of tenacity, grit, and special needs parenting moves you, please consider supporting Chris and Melanie directly to help offset mounting medical and equipment expenses. Every dollar goes directly to Brayden's care.
🔗 Support Brayden’s Care (Venmo): @ChrisBVolleyball
👉 Last 4 digits of cell phone for verification: 5884
Behind Chris’s positive demeanor on the #pickleball #pickleballpodcast courts is a profoundly inspiring look into a family's daily journey navigating a rare neurodevelopmental condition. From identifying early warning signs like infantile spasms and tracking issues at 4 months old, to receiving a definitive genetic mutation diagnosis at age 8, Chris shares the raw reality of high-cost specialized equipment, dealing with insurance roadblocks, and coping with medical emergencies like pediatric ICU stays.
This isn't just a story about a rare disease disability. It's a masterclass in maintaining a positive outlook when life deals you an incredibly tough hand, and what love actually looks like when it asks everything of you.
If this episode moves you, please consider supporting Chris and Melanie directly; your generosity will help offset ongoing and mounting expenses needed to care for Bray Bray.
The link to donate is below. Every dollar goes toward Brayden's care.
CHAPTERS:
00:00 Introduction
01:58 Brayden's Birth
03:10 Early Warning Signs
06:43 The GNAI1 Diagnosis
09:18 A Day in the Life
16:35 The Fight for Coverage
23:11 The Fundraiser & Final Thoughts
24:59 Shave (Poem) & Closing
26:51 Donating.
